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Graysen was born with Tetralogy of Fallot with Pulmonary Atresia. He started off in Cincinnati Children’s hospital, was there for 6 and a half months at birth.
He has had three major open heart surgeries. He also has DiGeorge Syndrome, which affects different body systems, his airway and heart are the only systems so far that we know have been affected.
I would be forced to quit my job. There would be no other people who would be trained to take care of Graysen.
He wouldn’t get his therapies and his special food. The already hectic stressful daily life would be increased dramatically for us.