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My name is Agustín, I´m 14 years old, I live in Córdoba Capital,
i have a disease: Adrenoleukodystrophy
This desease is destroying my brain a little bit everyday.
If we don´t do something fast, I won´t have the chance to get a surgery,
because the time is a very important factor with this desease.
We need to raise a million dollars, something almost imposible...
we never know how it feels until it happens to us so...
that is way i am asking for help... to be able to have the surgery.
If I don´t get the surgery my time will get shorter
and I will be left in a vegetative state and that doesn´t have a solution.
you are left in that state forever and you simply die.
With only 14 years, Javier Agustín Bustos Fierro has a complicated neuronal
desease called ALD-X, known because of the movie " Lorenzo´s Oil"
It causes the lack of vital functions, such as walking, talking, urinating, etc.
leaving the ones that suffer it in a vegetative state.
The family needs to raise U$D1.000.000 so that they can travel to USA,
the only place where the bone marrow surgery was carried out successfully.