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Alternating hemiplegia childhood is an extremely rare disorder which occurs
in young infants usually under 18 months of age but continues throughout their life.
It is a very severe condition, quite disabling,
where children have episodes of paralysis or weakness
on one side if their body and sometimes this is
both sides of the body, and during these episodes of weakness
it significantly handicaps the child
where they might have difficulties with things like feeding themselves,
crawling, or walking. These episodes of paralysis
are often accompanied by a significant developmental delays.
To those afflicted with AHC,
every day is a new struggle a struggle through uncertainty
a struggle through pain, a struggle to control a body that just won't cooperate.
They struggle to do this simple things that most of us take for granted
but they keep going.
These children spend every waking moment not knowing what the
next is going to bring:
if they'll be able to move, if the paralysis will last five minutes,
five hours, or five days. Every episode keeps them that much for their from
having the one thing they most desperately want
and normal childhood and still they keep going
they never give up they're pushed to their limits
every single day an *** to deal with the reality that no one
childern act should have to face and all you have to do to help them
is don't last year we got one step closer to a cure
by discovering big gene mutation that causes HC
every day and hear from my daughter and others like her
it's closer have read our could be the one that makes the difference
where can we have to prove can give governor
the No