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*** People Say
So..what do you do? For work?
To Sick and Disabled ***...
Oh, um. I don't know anyone who's disabled. What's that like?
So, so when are you getting better?
Oh. Oh, it's that thing? Again? Oh. Well that sucks.
Are you really fatigued, or are you just tired?
Did you just wake up? It's like, afternoon.
Come on, let's just walk there. It's not that far..
It's only five blocks away
Oh, Oh, you can move your legs. Then you can walk then, can't ya? Or..
If you really wanted to, you could walk. Like you can move your legs, you can stand up,
you can walk.
Yeah you should come to the show, I mean it's totally accessible. Um..except for there's..I
think there's like six or seven stairs and... The bathroom's downstairs...and there's always
these guys kind of pushing into people but we can just, you know---get them out of the
way..
Don't you think you might be exaggerating a little bit?
I think you might just be more sensitive to pain than other people...
You know, you were late again and it just would really...do you have to...can you just
be a little more intentional about getting here on time?
Nah, that's some flaky West Coast ***.
You know, we're never gonna build a movement if you're in bed all day.
Wow, that's nice. I wish I could sleep til two PM.
Have you tried acupuncture?
Oh my god, do you eat meat? You know this was once an animal, right?
I mean, self-care? It's so bourgeiose.
God, can you just get better already?
That's crazy, you were sick the last time we talked.
Are you—and you're still sick?
Have you tried acupuncture?
The only real disability is a bad attitude.
I'm training for the half-marathon for justice next week.
You wanna run it with me?
Do you exercise? At all?
[sound of door opening and closing] [aerosol spraying]
[door opening and closing] [coughing and sputtering]
Oh, ***! [water running, more coughing
a) [coughing] Hey, what's wrong? Hey... b) [more coughing]
So. What makes you think you have fibromyalgia? So...what makes you think you're depressed?
So, what makes you think you have an eating disorder?
Okay, say ah: 'Ahhhh.' Okay. I am writing you a referral to see a
gastroenterologist.
29: I'm a gastroenterologist. If you want to know about food allergies, you're gonna
have to talk to a dietician.
I'm a dietician, but what you need is a psychiatrist.
I'm a psychiatrist. What you need is a cognitive behavioral therapist.
I'm a cognitive therapist, but what you need is a neurologist.
..as a neurologist, I can tell you that the brain and the intestine are connected. So
what I'm gonna do is write you a referral to see a gastroenterologist. [quiet, angry
music starts]
You again?
Have you tried acupuncture?
@#$%! [angry music plays louder]
It sucks, it's such a drag. You're sick all the time!
Hypochondria.
Have you tried acupuncture?
a) Hey, what's up? b) Hey! What's up with the cane?
a)What--what do you mean?
Psychosomatic.
So did you hurt yourself hiking or something?
You know, people have it a lot harder than you do.
I don't know man...she's like, crazy. No, I mean like, really crazy.
*** sick and disabled *** say, take one...
*** sick and disabled *** say, take two... Why did I agree to do this video?
Living on the West Coast, I would have to say I get a lot of people telling me what
naturopathic remedies or other things...or explaining the neurobiology of the body...
Because I, at 33 years old, have not tried everything I possibly could to stop myself
from losing my ability to walk. Like I just let it happen.
a) No no, don't—I need this for support. b) Okay...It's cute...
a) Can you not—can you not? Can you STOP?
...I told my therapist but that didn't really work so then I went to my acupuncturist who
recommended these traditional Chinese herbs, but then my astrologer said that I should
actually check my Tarot reading, cuz I'm not really sure if this is some, like, energetic
block or something? Or, uh... ...II
a) Do I have hives yet? b) Yeah, wait. Um—is this okay?
I'm not disabled, we just live in a disabling society.
I've been using this since we met—hey can you not? I've had this since 1998.
[sigh] Okay, I take it back. Feeling pretty disabled right about now..
You were okay yesterday...weren't you just walking without it? Yesterday?
I just use it as an opportunity to *** with people though.
I've told people I was working on my senior thesis for uh, for my doctorate in sociology...um,
where I was just—you know, I'm brown, ***, a woman...how else can I make things harder
on myself? So...
a) Okay, what happened was that I was on my way to go see my therapist...
b) Uh-huh.. a) And then—but then I get on BART
b) uh-huh.. a) and then this person sits next to me, like
super, super scented and it was just spreading out...
b) Oh ***. a) And then I try to reach for my spray but
I forget—and then I realize that I left my spray at home..and then I was gonna be
late to go to therapy... b) Uh-huh...?
a) [long pause] b) Are you okay?
a) What was I talking about? b) Um....***.
a) [to camera] Do you know what we were just talking about?
b) [behind the camera] Um...
a) ***, umm... b) [behind the camera] Chemicals...?
a) Spray..you had your spray? c) spray...
a) Do you wanna watch Battlestar Galactica on Netflix?
b) Yeah. Do you have any painkillers? a) Yeah, totally. Do you want some....
While I agree reflexology would probably be helpful, it is not going to make me jump up
and do the 50-yard dash.
a) How are you doing? b) I'm feeling really ***.
a) Oh ***, I'm sorry...
Is it your...? Okay, um I've got Ativan, Xanax, weed, muscle relaxers....
Okay so I don't know, I've got strawberries..I've got watermelon if you need to be like hydrated...and
there's like beets and stuff, and um, tabouli—and I've got...
...there's a lot of food, do you want some chicken? Um yeah.. Do you want a massage—I've
got the heating pad, do you want the heating pad?
Let's see uh...we got some oranges, and some yoghurt if you're not feeling feeling very
well. And oh—does anybody need meat? Do you need meat? We've got some meat here..
....nettle tea. I've got some Anemone..do you want a salt bath? I've got baking soda...
Yeah, so just help yourself, you know? I'm not sure what your dietary restrictions are...
grabs my hand, and he was like 'I practice reflexology.' And I said, 'Well, I'm gonna
give your reflexes about three seconds to let go of my hand before my reflexes knock
your *** *** out. You just don't *** grab my hand, you know?....
a) [long pause] b) Are you okay?
a) Yeah! b) okay.
a) Umm....
a) So can I tell you about my treatment plan that I'm doing right now?
b) Yeah! a) All right, so you know, I've been going
to acupuncture a lot and it's been really helpful...
a) ..my acupuncturist told me about this woman who is a pelvic floor specialist and so basically
I'm getting somatic therapy on my *** which is like getting gently finger-banged by a
straight lady...
[Silence, Disco listens.]
..But I feel like my daily pain level has gone from like a five to like a two, and I—like,
I feel like really less angry at my father right now.
Okay, hold on. Let me just find it in my texts...okay, um: 'Yeah it's totally cool, don't come to
the meeting. I'm so glad you're staying home in bed. Community care!'
You do such awesome art and community organizing from bed., and if all you did was watch Netflix
for the rest of your life, that would totally be okay :)
Sometimes I just tell people I just got tired of it...that I've been walking for thirty-something
years and I thought I'd—you know, I might as well just try something new..
: a) [from behind the camera] What'd they say?
b) Um..which time? a) Ok, yeah..[laughing]
Thanks for buying me Dragon Naturally Speaking for my birthday.
a) That was so good.. b) Oh that was SO good.
a) Ahh...***, baby? b) yeah?
a) I think I *** up my ankle again... b) I think I threw my back out again!
a) Oh no! b) Oh nooo!
a) Here, lemme get you arnica... b) Where's your brace?...
I'm all: you know what actually? One of my long term goals besides healing my hernia
and not having to have surgery is to be able to get *** again...
itsfunny to talk to your straight, pelvic floor specialist, like woo-woo PT person,
and I was just like: "I like penetration, like a LOT. Really comfortable with like,
some deep penetration...
So uh...what method of birth control do you use?
[lears throat] Um...***? [