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bjbjD She did it all volunteer all the editing, all the information that she collected. It
was always out of her home. Even when she died in 1989 it was still in her home. She
did not receive any pay. There was no rent because she just went upstairs to bed. People
would donate money. They started a membership fee. I m not sure when, either 83 or 84 or
something like that. Even if you didn t pay you still received the Gazette. So expenses
were paper printing and mailing and part of what she would talk about even with the mailing
she had a pool in Cleveland. So she would have LSD parties where you would lick stamps
and donk. So she would collect information for a year and mail it once a year. So she
would get all of the polio people or her friends or whoever she could muster or who would come
and they would have a party around the pool and be the time that they would stuff the
newsletter they had in envelopes and put stamps on it and address it and drop it in the mail.
So obviously there was some expense for that. People would donate her. There's some things
in the archives where they would send little cards. I can remember one in particular, little
cat drawn on it, that said "our kitty is empty. So please send us money." One year I think
they had Siamese cats. So one year they advertised and offered, I don t know if this is the right
word, stud for cats. So she did that. She used to do was called the Brown bag, to buy
little bags and send them to people and then it would be brown bag collection. She d ask
them to stick money in it and send it back. So she did that as well. I came in 87 and
there was a lady who was there two years before me, but that was probably the first paid positions
in '85. And there was administrative help as well. And that is when it became you had
to have more money. She didn t have a regular mailing schedule but she would try to do one
every year. She would just say that she would collect information and when she got enough
information then she would send it out. The first mimeograph newsletter they called it
Toomeyville gazette because of the pavilion being called Toomey Pavilion. Then she took
it over and called it the Toomey Jr. Gazette. She thought that her taking over meant that
she couldn t do it as well as they could. So it would be a junior edition of it. And
then when they moved to St. Louis that s when they changed it to the Rehabilitation Gazette
because it made no sense to call it the Toomey Gazette because they were not there anymore.
In 1983 they changed the name of the organization to Gazette International Networking Institute
which is really G.I.N.I. They did that because Rehabilitation Gazette was viewed more as
a magazine and they wanted everyone to know that it was now an organization. That s why
they did that change. They wanted to switch from being a magazine to it being an organization.
And so they chose to honor her. Whey would call it big GINI and little Gini. Big GINI
was the organization and little Gini was Gini, the person. And then she died in 1989. We
switched in 2003 to Post-Polio Health International. Mainly because no one knows what Gazette International
Networking Institute is with out explaining it. It had been long enough since she passed
away that it didn t cause too much stress for people that knew her. From my point of
view when people would call and ask and want to be interviewed and want to know about polio
and the late effects of polio we would always get bogged down. "Why are you called Gazette
International Networking Institute?" And you get into this whole story and that really
wasn t what they wanted to know. It didn t get to the core of post polio syndrome and
the late effects of polio and so it s been a good thing for the organization and that
s why we did it and now, you know. Other than I had a poodle skirt. What I know about it
is only what I have read and what other people have told me. So what I do think it would
be best if the people who received it and had it by their hospital bed, that had and
impact on as they have told me. I think it would be best that they say it versus my telling
you that. urn:schemas-microsoft-com:office:smarttags City urn:schemas-microsoft-com:office:smarttags
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