Tip:
Highlight text to annotate it
X
The very first thing that I always recommend
is to make sure that they get checked out
physically really well.
One of the things that happens for people who
have severe behavioral challenges
is that we assume
that it's a simply a reaction to the environment
rather than there possibly being a physiologic cause for that.
A lot of people when they get sick,
if they don't have traditional language,
if they don't even know what words to use,
may act out,
the same way we might act out
if we've got a really bad headache and we snap
at our partner or whatever.
Not because they've done anything,
but because we've been fighting the pain for so long
and it's not going away and
we're frustrated and all those other kinds of things.
So the first thing I do
and this goes to some court cases
and some things along those lines about,
Stickney vs Wyatt, and things along...
that we need to be ruling out
that there's a medical etiology or a medical cause behind this.
The second thing I think you really need to take a look at is,
is this possibly a manifestation
of a severe emotional disturbance
or a mental illness.
And it wasn't that long ago
that we didn't believe that people
who had intellectual disabilities
could actually have a mental illness.
There's some of the most famous names in our field
were saying, "No it's not possible,"
and when they later turned around and said,
"Oh, wait a minute, I was horribly wrong."
The problem is,
a whole lot of people didn't hear the second part,
the, "Oh, I was horribly wrong."
So, is it depression?
Is it anxiety?
Is it schizophrenia?
Is it an obsessive-compulsive disorder
that is biochemical in nature?
And I'm not trying to push medicines.
I'm trying to say that
we can't behavior manage a pancreas into creating more insulin.
We can do things to help
manage our weight and do our exercise
and eat correctly and all those other kinds of things
to help manage the insulin
production in our system,
but we still may need an injection.
We still may need to take an oral medication
to help our pancreas do what it needs to do.
The same thing is true with the brain,
and we forget that the brain
is an organ that can dysfunction in episodic ways.
In much the same way we can get the flu,
you might have an episodic mental illness
or severe emotional disturbance.
So it's... part of it is,
is teasing out... Is there stuff we can do
to help with self-esteem,
with not feeling so depressed,
with not feeling so scared about things?
So it's stopping and taking a look at that.
The next thing that I would suggest is
is what are they trying to do
that they don't seem to be able to do?
Maybe it's frustration,
that they're trying to accomplish something
but, for whatever reason, they're not able to do it.
Can we find a way to help them be able to do those things?
And the last thing I would suggest as an early step is,
are they trying to tell us something
and we're just completely missing it?
Is it their best effort with language?
That they are processing,
that they're trying to communicate, and say,
"You know, I'm really lonely" or "I'm bored out of my mind,"
or "I hate going to that day program,"
or "Please don't make me ride the bus again,"
or "I don't want to go to bed at 9 o'clock at night
and I don't want to take a bath before I go to bed.
I want to go to bed at 10 o'clock and
I want to take a shower when I get up."
And we make all kinds of rules and restrictions
and programs and things to make it,
sometimes make it easier for us,
but it makes it hell for the person.
And so I guess what I would say is
let's really spend some time
getting to know the person,
if they're not a family member or whatever
and, even if they are a family member,
rather than assuming you know the answers,
spend some time to say,
"Okay, pretend I don't know anything,
what is it that they're trying to tell me?"