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>> You had to take a hard decision didn't you? Or a bit hard perhaps? >> No
>> For you it was easy? What decision was it? >> Which one? To amputate.
>> You decided to amputate your legs. >> Yes.
>> And what has changed in your life? Before the amputation how were you and how are you now? Is it better or worst? >> It has been better.
>> All the tests that were done, pre-birth tests during pregnancy did not detect any malformation. This is the most difficult.
>> He is our first child and we don't have more experience. We only know Soufian, that's it. He came as he came.
>>Every boy comes with his needs, his troubles and Soufian had another ones and that's it.
>> (Head surgeant) Sandrow syndrome is an illness not very well described at genetic level.
>> The syndrome is there, but there is no any identical case to Soufian's.
>> (Head surgeant) What we know is that is produces malformations or alterations at locomotor level.
>> Most of the cases cause hand alteration, Sindactilia. In this case is the complete union of the whole hand.
>> And then the lower limbs have duplicity of the bones.
>> Doctors always said that they'll do the maximum so he can be autonomous, at the level of the hands and the legs. Because it was a unique case, it was all tests, and they were telling us, they did not lie.
>> "Look, you will have this once we separate the finger... ". No.
>> Need cushion? >> No. >> NO? Sure?
>> You have it like this always? >> What? No. I use a cushion.
>> That's what I'm asking you, if you use a cushion or not.
>> Many of these lads do not have extra-schoolar activities and even many don't have activities within the school.
>> (Sports Fed.) The possibility of practising sport is quality of life and equality with other lads without disability.
>> First day we knew that... because it's the space he can share the other things he can't share with other people, even the parents.
>> We start training. One ball for each pair, pass and cut, pass and cut.
>> (catalan and spanish basket wheelchair couch) One thing we talked with his parents is that Soufin has troubles to express feelings in his environment.
>> He has shown us here that is the opposite. He takes the ball, enters the pitch and he expresses only happiness.
>> (Red bracelets, 2010) TV series
>> Yes, this one. It's this one.
>> His mates also followed the show and he was the one who knew the most about the topic. This is my terrain.
>> And with this show, now it's us, those are Us. And they saw themselves identified.
>> Listen. Now we go up to the classroom. All right? >> We do that about theatre, don't we? >> No, today not.
>> Now we go up to the classroom and I don't know if Maria or I will take you down. But anyway at 5 do not leave without saying goodbye, all right?
>> Ruth? She also helps me very much, she treats me very well, and helps everyone at class. She has friends at the classroom and she always helps us.
>> Before I used to accompain him to the classroom, not any more. Because it's not needed.
>> (Special Education) If he falls, I will help him stand up, but he alse needs to fall and this is the goal, that he'd need no one.
>> Ruth is part of the family. I don't know where to place her, but ...
>> Ruth has said you have to go down...
>> First day I talked to her, I thought how we could understand, that she'd understand is not I don't want she helps the boy, but...
>> My main goal is to give him the tools he needs so he doesn't need me.
>> No no, before I end talking she is already saying what I am thinking.
>> This is the objective and it should be the objective for everyone.
>> I'm going down, all right.
>> (Soufian's tutor) When I came to the school I was warned that there was this boy, and first impression was very shocking. I thought "How I am gonna do it?" and of course is a challenge.
>> (Headmistress) When he started it seemed that he'd need his own laptop, for the difficulty. And no.
>> And the boy writes and doesn't need laptop neither any special thing.
>> For the other children and the school, Soufian doesn't have any dissability. >> They have come up together and he's like another one.
>> He tries, and the School and the family also tries, to do the most normal schooling as possible.
>> Puku is a green caterpillar with eye-catching black and red patches, it's gangling like a sausage, the ants and the edge-hog and all the forrest friends look at it ...
>> I believe that Soufian without the parents he has, he wouldn't make it, because his parents are very firm.
>> The normal one doesn't exist, neither the perfect one. Things don't need to be done like this, there is no only one way to do things, or two. There are many and other still to discover.
>> When the doors of the shell open, it can be seen some wrinkled shapes that are spread slowly. One day they stop eating and what does it happen Soufian?
>> They make a cocoon. The cocoon can be 1km long. >> Perhaps in some days a butterfly comes out.
>> Soufian is doing this, he's like giving "pum pum", to wake us up!
>> The limits are establish by persons, we do not have limits, persons establish limits or not. Physical or appearance or mind limits, we establish them.
>> He wanted Messi. >> Because for him Messi is very important.
>> There is a connection between him and Messi, that perhaps he only understands.
>> We have to go straight and there... >> You see where is the care in the middle of the street? Is the entrance to the parking.
>> Who is the player that is coming in? >> We hide him. They will take photos!
>> And you... No, no. Just kidding!
>> There are persons here? >> Yes. Let's see if they guide us...
Camp Nou, Barcelona. May 15th 2011.
>> I think if the players leave we won't notice! >> Doesn't matter, they can leave...
>> I am a Barça fan because they do not cheat, they do not do bad things, they do not insult much, no no they do not insult and well... they are very good.
>> And besides winning, they do not play only for money.
>> Kids, even we don't think about, do not see only the players when they score a goal.
>> Barça team alse represents all this values.
>> This value of humility, fight, you know?... to fight until the limits.
>> He feels very identified. To fight to achieve something, to make an effort until he can't anymore, auto-improvement.
>> Further than playing to win, to achieve things, I believe that first and foremost is the person, the human being,
>> and we know we are watch world-wide, for what we do by the people who like football, and I believe we are the first who have to give a good image.
>> In reality, I believe that he sees his fight with a parallelism to Messi's fight. Messi fights the ball till the end, like other players...
>> ... also fight, but he fights HIS ball, till the end.