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out of arrogance of people's fears that have been program in court dubin is in
the studio with us he is the president of the committee of ten thousand corey
walton the program pleasure to joint thanks thanks for being with us about
that you got you got my key w
within three to listen to the radio talk at nineteen ninety four
if you'd like to have you as a whole
what is the committee ten thousand
we represent the ten thousand people with hemophilia that were infected with
h_i_v_ aids and or hepatitis c from
contaminated blood in the nineteen eighties we took the head of the blood
supply we were essentially the nor endorsed american defense for the
nation's blood supply demand that came on in that was our quote that we came
out with when we came to washington
in the late eighties and started pushing the government pushing the industry will
we took a class action against the industry which we settled a group of us
and then we passed the hemophilia the ricky ray hemophilia relief act
which mister clinton was instrumental under his watch and cleaning up the
blood supply and assisting in devastated pop we lost fifty percent of the
population wallace twenty thousand
persons within the feeling in the nation at that time there were ten left and
there's only fourteen hundred left of that uh... thousand i'm one of them
wall that's incredible
or work we're pleased to have you with us korean and and by the evening it's
just for sweet and i can't say i'm not allowed myself precious good the bad i
live for today goes so now you know i remember that air i remember
return regan basically dismissing aids as well that's a gay disease and and and
you know and as if
d_p_ portrait worthy of
the anything and then
and that it was actually kill philly axa kind of
turned it
from being
aimed at the gate iseas in a way that kind of coverage as to the right wing
republicans might remember him as well as a there's a at a caveat to that
the community was very split at that time
but for the committee of ten thousand we came on the scene is amazing agency and
our allegiance first and foremost was
safety of the blood supply but it was also at working closely
with the gay lesbian bisexual transgender community i chaired
california's prevention committee i chaired a working group
because we felt we were an integral part all people with h_i_v_ aids
some people tried to call us the innocent victims and the committee's
position was there are no it isn't victims all people struck by must be
taken care of and it's been are other unknowns nine innocent victim there are
there are no right or wrong enroll in iso together
and for a lot of
people with hemophilia tom where do you think they learned about its our
community shot down government shutdown are got shut down
and gay and lesbian centers throughout this country welcomed us as willing
participants with them
and the aids fight and some of them mentored me and things
that i needed to learn
what unfortunately what happened is the bush era moved us back all too i get any
politics they separated sure
sure and so what
what does the committee a ten thousand doing
it what is the committee of temper
he needed more it he is rotate that might suspending right in your mouth and
i know
as our time i had more sense as quite a yeah i bay what is the canadian ten
thousand opt to these days when we were going on and what i want our blisters to
know i said i i was the first grassroots consumer non-gaap to be appointed to the
f_d_a_ blood products advisory committee those of the people
where the problem happened once and now we're part of that we're stakeholders
and we continue to be kind of blood safety action team or a small group were
much more structured like a civil liberties organization from the sixties
than we are a disease state organization we act
and today we're working closely to our staff dave cavanaugh here in washington
on a cd a victim the affordable care act
uh... insurance care major issues that's it kind of simultaneously with blood
supply safety issues i will always be our primary role
but the insurance companies are
or getting set to put us all
on welfare u_k_ basically
they're about to reject covering the products that's what's happening tom the
reality is that how they do it
rail shock first of all holy wrote a song they are concerned in the mirror up
to their concerned
what's gonna happen as they see a rolls out and they know they can say to me
mister giving you have been the failure
your clotting factor cost six hundred thousand dollars a year
we're not gonna cover you
and they did that for years our people ended up on welfare they had to divorce
even though they were still couple
worst-case tom might have to get a divorce so my home go on welfare i'd
remain married dot
to cv but truces
they destroyed my life
her and the problem is
the big insurance realizes
that the goal is to get the chronic diseases covered the whole systems based
on the healthy people help cover very basic table americares yes yeah i i i
don't use that as an advisor comes in then basically the health insurance
companies are
they're trying to throw you ought to what medicaid or yet they want the
government to pick all of the chronic sought because they're so expensive
you're pushing back on this pushing back as hard as we get sourcing back as hard
as we push back on safety ta how can our listener self-importance listeners to
get on the phone with their representatives their local papers and
talk about what's gonna happen
went california or another state for instance puts a hundred thousand dollar
limit on my care annually
went to keep me up and talk and then walk in at six hundred thousand for just
the clotting factor ramp to keep me from bleeding
we take this personal time by mistake this is an attack
just like the safety issue yeah and worked checked in and fighting with
everything we have well good and we're working with missus capps who's been an
excellent advocate
her and mister mckinley on the republican side of introduced h_r_ four
sixty which is a real bipartisan bill cut that will rein in big insurances
remembers the house representing members of the house and mishaps from santa
barbara her mister mckinley i believe this from west virginia first district
republican and together they introduced h_r_ four sixty which we urge everybody
to support
they really mapped out
some standards that insurance must live by ok similar thing people can do is
caller member of the house representatives and say you know support
each are four sixty absolutely is there a name for the bill or how would you
summarize that if you're calling a member of congress is offices i want to
support this thing for those people that he was really a reputation access to a
four uh... to treatments ac
of two thousand thirteen is the caddy access to treatments access to treatment
because essentially what's gonna happen to them
he's either welfare were cut off and if i don't have clotting factor assuredly
doubtfire could bring believed all kinds of things alia of course and the website
for the committee ten thousand c_ o_ t_ t_ one dot org were rebuilding it's been
tough times were small organization tom we hang on
were rebuilding our website
and there's not a blood safety website to match are as anywhere in the nation
but we're regrouping
uplifting our side
doing god's work right
thank you tom thanks for being with really appreciate the offer
condition
i'm a former specifically program
shows
placing our theocracy
and thank you for your kind words for you