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>>> DR. JAY K. HARNESS: There is exciting news for lymphedema patients. Stanford University
School of Medicine has announced the establishment of a National Breast Cancer Lymphedema Registry.
The concept and the idea here is to recruit 1,000 breast cancer survivors in cooperation
with their local doctors so that data and information can be gathered about the development
of lymphedema after the treatment for a breast cancer. Typically, this treatment includes
a mastectomy, perhaps lumpectomy, and also including radiation therapy.
There is a fair amount of evidence to suggest that the early detection of lymphedema is
really important in not only starting from treatment but also perhaps even in preventing
the development of lymphedema altogether.
I am also pleased that this national registry will be done in cooperation with the American
Society of Breast Surgeons. This is the country’s largest society of breast surgeons with 3,000
members scattered across the United States.
The registry itself is not quite open. We will provide you a link at LymphConnect to
show you the announcement about this registry and as the registry actually opens, more information
about it will also be provided at LymphConnect.
This is really an important study and important registry, and if you are a breast cancer survivor,
I would encourage you to look and go to this website as it opens up and then discuss with
your breast surgeon the possibility of you becoming an enrollee and participant in this
very, very important registry.