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There are a few things that come to mind when I think about the best decisions I have made
regarding Lynch syndrome. Above and beyond, #1 is going to the Mayo clinic once a year
and doing all my screening at once. It just lifts an emotional burden that I used to feel
most of all times a year, may now just deal with everything at once and while I still
feel sadness and loss throughout the year, it's a much more manageable sense of sadness.
Secondly being open and honest about Lynch syndrome has made it, so I do not feel alone
and I feel I can be a resource for other people who are dealing with similar issues and I
like to help people and just being open and honest and telling people my story and I hope
that will help other people and lastly, I noted that by dealing with Lynch syndrome,
they are doing the screening that I do and telling people about it, I am going to end
my family's cycle of loss. I am the only person in my immediate family that has Lynch syndrome
and I believe that my children would not see Lynch syndrome and related to the emotional
loss that I do because I am the only person that could be lost with Lynch syndrome and
with all of the screening I do, I do not believe that I will. My parents do not have it, my
brothers and sisters do not have it, and thus there is no fear that my children will experience
the overwhelming loss of an entire side of a family due to this syndrome.
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