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Kirsten was born on April 7th, 2005. And I think we knew from the beginning when she
came home from the hospital that something wasn't quite right.
She had a very difficult time nursing and within two weeks we found out that she had
a heart disease.
She was always very petite, she was very small, but when she became mobile and it was time
for her to start talking, she was talking, but nobody can understand her.
Her sounds weren't developed. She had asthma, we were in and out of the hospital for croup
and just constant infections.
Around age of five, her five-year well visit, we discovered she has scoliosis.
I have always said that something is not right.
I feel like everything is connected and everyone just kind of said that no, the scoliosis really
don't have anything to do with her speech or the speech really don't have anything to
do with her heart and her frequent illness, kids just get sick.
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She needs to be in a place where everything is comprehensive, and everyone talks to each
other, because I feel like maybe that was one thing that went wrong with our story is
that the doctors were looking at her medical records but they weren't really speaking to
each other.
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Every person in this facility that has spoken to us has wanted to know our story.
They literally have taken the time to speak with us, to listen to us, and to learn as
much as they can and that's what made me want to come here.
Dr. Krishna operated on her and now she is talking completely normal and that was important
to us because with 22q, she is always going to have hurdles, she is always going to have
struggles but this is one thing that she is not going to have struggle with anymore.
All of the doctors are very compassionate. They are very understanding. You see the doctors
talking to each other and that made us feel good.
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