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Hello, I'm Juliet Stevenson
As an actress and often have to pronounce long and difficult words,
but i struggled when i first came across the name of this disease
Lymphangioleiomyomatosis.
Luckily it's also known as LAM for short.
However, my struggle to pronounce its name is nothing
compared to the struggle experienced by sufferers of the illness.
It's predominantly diagnosed in young women
and for many of them
a flight of stairs is a mountain
and picking up their small child is simply impossible.
LAM primarily attacks the lungs destroying healthy lung tissue and
leaving the suffering increasingly short of breath.
Currently there is no cure for it
and no proven
effective treatment
so for many patients their only hope of survival
is a risky lung transplant.
But for those women who are diagnosed with LAM
there is hope.
I'm very proud to be a patron of LAM Action,
a charity because which has two main aims.
Firstly it provides much needed support information to LAM sufferers and
their families
and secondly it advances crucial research into the disease including treatment
trials.
But of course all these activities need to be funded.
If you think you can help
in any way at all or if you want to know more about the disease please
contact LAM Action at
www.lamaction.org
www.lamaction.org
www.lamaction.org
Thanks very much for listening