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And the doctor was looking into my right eye and they said something is back there. So
my mom took me in for a test and it turns out I had a brain tumor. And that is when
the gates of NF opened. It affects me by giving me migraines basically all the time. I have
had the same headache for five years, it hasn't gone away. It gets worse and worse every day.
I have three brain tumors, one by my pituitary gland and two back here.
I don't have the perfect body, my back is not smooth. I don't have I guess what you call it one spot that's
supposed to be a birth mark.But I am me, I mean I can't change the fact that I am me.
School was really hard for me the first little while and I still struggle with language arts.
I look like I am about like 13 or 12 you know, but I turned 17
on the 10th of this month. Which is cool, 17 finally. It's good because it makes
you stronger it makes you, you know the little trivial things not seem so important, and
it gives you a different perspective on life. You can appreciate different things you stop
and think each day is a gift. My friends you know they are with me all the way. You know
if I have a problem they will back me up one hundred percent and it's just nice to have
friends you know that like you for who you are. Well I am going out more and being more
social then what I once was. I'm tying to drive if anyone would ever get me a car.
Mom, if you are watching this, I need a car. They let me drive around and everything, so
I sleep over at my friend's houses a lot just to get away from my family for a little while
and I go to the movies a lot too just to get my mind off of things. My mom still
likes to treat me like I am a young kid. I didn't think she likes to see me grow up fast
or anything. My mom has come with me to every MRI I have had, my dad comes at the surgeries,
even my brother, believe it or not, my older brother plays a role. Some people say oh well
people should feel sorry for you. I mean most people don't have this and all that, and I
am just like you know, I don't, it bothers me but at the same time it doesn't, I mean it
makes me who I am and it makes me unique from the others. You get a lot of courage when
you have had it for 16 years, or however many years. You just get the courage to ask
someone to help you and talk to you about it, and help you deal with it. Like help me
get past the past and into the future. To me, I am actually proud to have NF because
it makes me who I am and if I didn't have it, I might be just like everybody else. It
has strengthened me knowing that I can go though pretty much anything and I will be okay no
matter what.
And he says no matter what you have you are still beautiful, the most prettiest girl to me ever. And just every time he says that it just makes me feel like a better person
that I am not some kid with this disability if what you call it. And just makes you feel
good about yourself that someone else besides your friends and your family actually think
you are beautiful. It just puts a smile on your face.