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Physicians can get involved by recognizing their patients can benefit
from this sort of research, encouraging them to participate in research, encourage them
to become more knowledgeable about their diseases as much of what we’re doing here is going
to be available to the public and I think the most informed patients are the best patients
and they do the best with their disease once they have a better understanding of what’s
going on in the state of the art in their particular illness.
< Dr. Naftali Kaminski> We really hope that
in the next three, maybe two to five years, we will start seeing diagnostic tools based
on genomics and drugs that are based on insights from genomics and it’s important that physicians
are able to understand these drugs, these papers and communicate to their patients in
the right way so I think from our point of view the most important thing is one, is that
they look at the website, the other is that they educate, the third is that they actually
communicate to us what’s working and what’s not and are we going, heading into the right
direction.
We can do all this type of research into the molecular underpinnings
of disease, but if the clinical community doesn’t embrace what we’re doing, understand
the terminology, and be prepared to apply it in a clinical setting we’re never going
to get from the bench to the bedside. So I think it’s imperative for us to go out
and seek the clinical community as partners in what we’re doing and I think it’s critical
that they be willing to embrace new technologies and new approaches for diagnosing and treating
lung disease.
The public can help us by supporting our studies, participating in
our studies, demanding results from our studies that actually change the way we take care
of patients and the way we view patients with disease.
It’s critical that
the public will be educated about the diseases it’s also critical that the public will
be educated about the research and actually acts as both an advocate and as a monitor.
So one thing that the public should definitely be involved is actually explore the website,
look at the insights, we’re going to really put things, new information out there.
It’s going to take
a while so I think the public needs to be patient, we need to evolve, I mean these the
analysis of these data these huge, huge data sets is evolving and so we need to learn a
lot more but down the line we really hope that it can make a difference.