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>> PROBABLY THE MOST EXPECTANT TIME THAT FAMILIES HAVE IS ONCE
THEY GO HOME.
WHAT'S GOING TO HAPPEN THEN?
AND I THINK THAT IS A MAJOR HALLMARK OF OUR CENTER
THAT WE CONTINUE TO FOLLOW THESE BABIES.
>> IT'S IMPORTANT TO BRING ALL THE HEALTHCARE PROFESSIONALS
TO THE BABY.
AND SO THAT'S WHAT WE DO IN THE MULTIDISCIPLINARY SPINA BIFIDA CLINIC
AT CHOP.
>> THE SPINA BIFIDA PROGRAM AT THE CHILDREN'S HOSPITAL OF PHILADELPHIA
WAS THE FIRST MULTIDISCIPLINARY PROGRAM IN THE WORLD.
>> SO THERE'S 50 YEARS PLUS OF EXPERIENCE.
>> IT'S AN INTERDISCIPLINARY COMPREHENSIVE SPINA BIFIDA
PROGRAM THAT REALLY IS GEARED AT LONG-TERM MANAGEMENT.
AND THERE ARE HUNDREDS OF KIDS IN THE PROGRAM AS WELL AS ADULTS.
>> THE FOLLOW-UP OF THESE BABIES IS VERY IMPORTANT FOR THEIR CARE.
BUT ONE ADDITIONAL ISSUE AND BENEFIT IS THAT THESE PATIENTS TEACH US.
>> ONLY WITH THAT ONGOING COMMITMENT OF THESE PARENTS
TO SHARE THEIR LIVES AND THEIR CHILDREN WITH US ARE WE GOING
TO CONTINUE TO PROVIDE THAT INFORMATION FOR FUTURE GENERATIONS.
>> THERE WILL BE MORE LESSONS TO LEARN THAT WILL ENHANCE CARE,
THAT WILL ENHANCE COUNSELING, AND THAT WILL ENHANCE THE CHOICES
THAT FAMILIES CAN MAKE.